It’s day one of the Easter holidays and there are so many places to go, so many things to do, the possibilities are endless – only when you’re living a different kind of normal, life is lived at a slower pace, the simplest of tasks seem to take five times longer than normal and so today we achieved a day trip to the toy shop!
It’s the holidays so for some that means a long lie and lazy mornings – when you’re living a different kind of normal life it’s 24/7 – you don’t get holidays from that!! So the day started as normal at 6am after being up several times in the night – who even needs sleep anymore??!! Chest physio is the first task of the day for Zac followed by meds and feed started. Thank goodness Caleb set his timer and said he was staying in bed until 8:30am – breathing space to get my own brekkie – I did contemplate having Easter egg then decided cereal was better fuel for the day!
We checked the weather and figured it was too cold and damp for Zac to do anything outdoors so inside job it was, the boys were both excited to have Easter pocket money so unanimous decision was made – “we’ll go to the Toy Shop”.
Getting dressed: the operation begins – sma means Zac needs full physical support with personal care so first job is getting washed, then picking out his clothes (he likes to choose himself & change his mind several times before anything actually goes on), and finally physically lifting and dressing. Now to get Caleb ready – this boy loves a challenge so getting dressed can’t just be a normal task, oh no, the timer gets set and he tries to beat his record each day as I count down & remind him which order clothes go on in. Two boys dressed and it’s like we’ve ran a marathon already!! Bags packed and by the time we actually make it to the car it’s 2.5 hours since we said “let’s go to the Toy Shop”.
We drive to a shopping centre an hour away – partly so we can recover in the car from the morning’s marathon and partly because it feels like we’ve accomplished more if we manage a location more than 15 minutes away from home. We listen to eighties power ballads, an hour to chill before marathon number two begins.
We arrive at the shopping centre and operation wheelchair begins – we only picked up this new wheelchair last week but already Team Cam is a well oiled machine – one grabs the frame, the other locks the wheels in, an arm rest each, one side of the back rest each, anti tip wheels on and we’re ready to roll!
There is much excitement as we manoeuvre our way around the toy shop – Caleb our numbers genius shouts out the price of practically every toy carefully calculating his pocket money up. I remind him every few minutes to use his quiet inside voice and much to the amusement to every other shopper he uses his outside voice to announce that he has enough money for a dog poo game & oh how he loves poo!! And of course as we make our way up and down the aisles our big green wheelchair gets quite a bit of attention. Finally the pocket money is spent – iron man play doh and minions game.
Lunch: restaurants aren’t much fun when one of your boys has physical challenges and the other finds busy new places challenging so a bank holiday pub lunch is now a thing of the past and sandwiches in the car is the way forward! Back to the car and operation wheelchair commences again – this time in reverse order and I think we set a new personal best! Sandwiches munched, power ballads back on and the hours drive back home to recover from the second marathon of the day!
We make it home and have about an hour to play with the new toys before marathon number three begins – dinner, bath time and bed!!
So day one of the holidays and yeah in our slower pace of life we’ve accomplished a day trip to the Toy Shop and I’m feeling pretty pleased with that! It’s been a good day in our “different kind of normal”. ☺️